#ALS #IceBucketChallenge #HillarySwank
Para sa mga nag Ice Bucket Challenge pero hindi gets ang ginawa nila.
Yung tubig na malamig na tatakbo sa likuran mo, mula ulo hanggang sa dulo ng spine, ganun daw ang pakiramadam ng inaatake ng ALS. Wala kang magagawa para pigilan ang sakit kundi huminga. Naaapektuhan din ang pasok ng oxygen sa lungs dahil nga hindi na gumagana ang kalahati ng katawan mo.
Ganun ang pakiramdam. Scary. Nakakatakot.
Nakakaawa din talaga para dun sa taong may ALS. Mahirap para sa mga kapamilya, sa mga nagmamahal sa buhay, at lalung lalo pa dun sa asawa ng may sakit. Iniisip ko pa lang, nahihirapan na ako.
I dare you to watch the film “You’re Not You” by Hillary Swank. Yung mga katabi ko na fashion bloggers, hindi na mapigilan ang pag-iyak. Nakakatouch siya.
I applaud Hillary Swank and Emmy Rossum. Award winning ang pagganap nila. Bawat eksena talaga, para akong nanonood ng teleseryeng pinoy plus the correct advocacies.
Let us continue to fight ALS. Continue the research. Donate and Nominate.
You’re Not You
Kate is a suave, successful classical pianist just diagnosed with ALS (commonly known as Lou Gehrig’s Disease). Bec is a brash college student and would-be rock singer who can barely keep her wildly chaotic affairs, romantic and otherwise, together. Yet, when Bec takes a job assisting Kate, Kate sees something special in the way Bec takes care of her. Kate and Bec find each other’s strength through their weaknesses. You’re Not You explores how two strangers can bring out the best in each other even in the midst of trials and tribulations. This movie also gives face to the much talked about ALS and will definitely make people more compassionate with victim of the said disease.
Initial release: October 10, 2014 (USA)
Director: George C. Wolfe
Running time: 103 minutes`
Producer: Hilary Swank
Hilary Swank, Emmy Rossum and Josh Duhamel
WHAT IS ALS?
Amyotrophic lateral sclerosis (ALS) or Lou Gehrig’s disease, and rarely Charcot disease—is a neurodegenerative disorderwith various causes. The term motor neurone disease (MND) is sometimes used interchangeably with ALS while others use it to refer to a group of similar conditions that include ALS. ALS is characterised by muscle spasticity, rapidly progressive weakness due to muscle wasting. This results in difficulty speaking, swallowing, and breathing. The disease usually starts around the age of 60, except in cases that are directly inherited when the usual age of onset is around 50.
About 5 to 10% of cases are directly inherited from a person’s parents. ALS is the most common of the five types of motor neuron disease.
The average survival from onset to death is three to four years. Only 4% survive longer than 10 years, although rare cases survive 50 years or more. Most die from respiratory failure. In much of the world rates of ALS are unknown. In Europe the disease affects about 2.2 people per 100,000 per year. In the United States, more than 5,600 are diagnosed every year, and up to 30,000 Americans are currently affected. ALS is responsible for 2 deaths per 100,000 people per year.
Descriptions of the disease date back to at least 1824 by Charles Bell. In 1869 the connection between the symptoms and the underlying neurological problems were first described by Jean-Martin Charcot who in 1874 began using the term amyotrophic lateral sclerosis. It became well known in the United States when it affected a famous baseball player by the name of Lou Gehrig, and later when the ice bucket challenge became popular in 2014.